It's important to remember the symptoms you had when you were first diagnosed with Cushing's syndrome. If they come back, it could be an early sign that Cushing's syndrome is returning. In some cases, it may be fairly clear that the symptoms you had before your surgery have reappeared. In early stages of recurrence, many people can tell that the recurrence is happening because they just feel "different."1
You can use the Symptom Tracker to monitor trends over time. When using the Symptom Tracker, make sure to record baseline levels for all the symptoms you're tracking. The baseline is how you felt before you had Cushing's syndrome. Over time, you can check your symptoms against the baselines to see if there are changes. If you suspect a change or recurrence, you can share this data with your healthcare professional. They can discuss next steps and determine what treatment options are available to you.
- Treatment options for recurrent Cushing's disease. Cushing's Support and Research Foundation Web site. http://www.csrf.net/page/treatment_options_for_recurrent_cushings_disease.php Accessed April 13, 2013.